Fragile X Syndrome (FXS) is a genetic condition which is not contagious – however the lovely personalities of those who live with FXS are contagious! People with FXS have strengths and also areas of need. These topics will cover various aspects of FXS and the Fragile X Premutation.
Here is a link to Histoires de famille, so that you can find out more about life with FXS.
Many countries have a family association which supports and connects those living with FXS. Here is a link to Cliniques de l'X fragile par pays, where you can find healthcare support (if your country is not listed, please nous contacter as there are informal networks we may be able to connect you to in other countries).
Click on any of the topics below to learn more about FXS.
- Syndrome de l'X fragile
- Les points forts du syndrome de l'X fragile
- Diagnostiquer le syndrome de l'X fragile
- Thérapies non médicales pour le syndrome de l'X fragile
- Aider une personne atteinte du syndrome de l'X fragile
- Les filles atteintes du syndrome de l'X fragile
- La sexualité
- Autonomie et consentement
- Génétique du X fragile
- "Les états de santé associés à la prémutation de l'X fragile"
- Activités de pause mouvement
- Frequently Asked Questions (FAQs)
- Cliniques de l'X fragile par pays
- Ressources
