هیئت مدیره

کریستین مولکاک (سوئیس)

My name is Kristin Mulcock and I am Vice Chairperson for FraXI and Co-Chair of the Swiss Fragile X association FRAXAS since 2015. Our association joined the European Fragile X network in 2012, and taking part in our annual meetings really inspires me since then. I am a mother of 3 children, 2 boys (born in 1999 and 2006) and 1 girl (born in 2009). Both my boys have Fragile X Syndrome, but it affects them quite differently. Even though this diagnosis is a challenge for us as parents, we still realise how much joy and fun we have with and around our children, how many great people we have met through them, and how contagious their joy is in the little things in life. For me, the biggest challenge is the negative perception of people with special needs in our society and the one-sided focus on their limitations. Therefore, raising awareness and educating our fellow human beings is very close to my heart. If they dare to engage with our loved ones affected by Fragile X Syndrome, they may discover all by themselves how valuable and enriching they are.