Many countries have celebrated X.X. (October 10th) for over 10 years as International Fragile X Awareness Day – you can read the history of this on our website.

All of Fragile X International’s Founding Members celebrate October 10th nationally, and together these countries have raised awareness across borders, unified in their desire to promote inclusion and equality for all those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions.

We now have the happy circumstance that many other countries are joining Fragile X International, with other traditions of celebrating awareness. For example, the U.S. Congress established 22 July as a national fragile x awareness day in 2000, and now our American friends celebrated July as an awareness month (https://fragilex.org/get-involved/national-fragilex-awareness-month/).

FraXI’s position is that every day should be a fragile x awareness day! Each day of the year, all of our families and those living with fragile x have to raise awareness among doctors, teachers, therapists and many other professionals as so many have still not heard of fragile x. With this in mind, we are happy to support all of our members in their national celebrations of fragile x awareness. We hope that everyone will celebrate with us on October 10th as well, so that everyone can be united on that day also.

Our central efforts will still remain around promoting awareness on X.X. (it was chosen after the X of fragile x!), but we will retweet and repost efforts from around the world on July 22nd and any other day that there is awareness being raised. Hopefully, together,we can build a world where the question is not, ‘What is fragile x?’ but ‘Wow, fragile x How can we be involved?’

We respectfully ask that all companies, corporations and other entities support the chosen national day celebrated in each of our countries, as this avoids confusion on the ground.

Thank you everyone for all of your efforts and support!

Download PDF of press release