Rare Disease Day 2025

Rare Disease Day 2025 will be celebrated on February 28, aiming to raise awareness for the 300 million people worldwide living with rare diseases. This annual event, initiated in 2008, seeks to improve equitable access to diagnosis, treatment, and social opportunities for those affected.

The campaign encourages global participation through events, sharing personal stories, and illuminating buildings to “Share Your Colours.” By uniting patients, families, caregivers, healthcare professionals, and policymakers, Rare Disease Day strives to enhance understanding and support for our diverse community. 

Free Social Media Material
If you would like to download social media and information cards in many languages please use the link here.

Let’s come together to support and amplify the voices of those impacted by rare diseases. Imagine if an entire nation the size of the world’s third-largest country was living with a rare disease. That’s the reality of 300 million people. We must increase awareness and drive policy changes to improve the quality of life for those living with these conditions. Together we can do more, more than you can imagine!

300 Million People Worldwide live with a Rare Disease

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