Fragile X International

About Fragile X International

Fragile X International is an International Non-Profit Organization (INPO), registered in Belgium.


We recognise that all people with Fragile X are of equal value and entitled to the same opportunities as everyone else. Our vision is to help those living with Fragile X Syndrome (FXS), Fragile X Premutation Associated Conditions (FXPAC) and their families anywhere in the world enjoy a happy life.

Fragile X International is a network where the power to act is in the hands of those with FX. FX is not a disease but a condition: we will promote social inclusion of FX at all levels of society. We will advocate that those living with FXS and FXPAC should not have to conform to society but society should embrace them for who they are. To further this aim, we encourage all of our family organisations to include at least one person with FXS on their Board.


Fragile X International is a network of country family organisations who will work together to promote, support and strengthen the FX identity as an added value to society. We aim to increase knowledge about the strengths of people with FXS; highlight the areas where they may need support; raise awareness and encourage research around FXPAC; and share knowledge in the hope that one day FX will be recognised for the benefit it brings to society.

Board of Directors Board of Advisors

Updates and Events


Leave A Message