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Fragile X International logo
  • About Fragile X
      The condition
      • Fragile X Syndrome
      • The Strengths of Fragile X Syndrome
      • Diagnosing Fragile X Syndrome
      • Non-medical Therapies for Fragile X Syndrome
      The person
      • Helping Someone with Fragile X Syndrome
      • Girls with Fragile X Syndrome
      • Sexuality
      • Autonomy and Consent
      the family
      • Fragile X Genetics
      • Fragile X Premutation Associated Conditions 
      Further information
      • Movement Break Activities
      • FAQ
      • Fragile X Clinics by Country
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  • About Us
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    • Family Stories
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    • International FX Awareness Day
    • FraXI Giving Day 2025
    • Fragile X International Congress
    • 28th of February is Rare Disease Day
  • Research
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Donate
Fragile X International logo
Fragile X International logo
  • About Fragile X
    • Fragile X Syndrome
    • The Strengths of Fragile X Syndrome
    • Diagnosing Fragile X Syndrome
    • Non-medical Therapies for Fragile X Syndrome
    • Helping Someone with Fragile X Syndrome
    • Girls with Fragile X Syndrome
    • Sexuality
    • Autonomy and Consent
    • Fragile X Genetics
    • Fragile X Premutation Associated Conditions 
    • Movement Break Activities
    • FAQ
    • Fragile X Clinics by Country
    • Resources
  • About Us
    • Family Associations
    • Family Stories
    • Become a Member
    • Board of Directors
    • Board of Advisors
  • News and Events
  • Research
  • Support us
    • Give
    • Sponsor
    • Fundraise
  • Contact
  • info@fraxi.org
  • RPM Bruxelles 0776.532.015
  • A Slovakian Family with two boys

    The L Word: What no one tells you about Fragile X Syndrome and why it is important to talk about it

  • The Future of Genomic Newborn Screening: Screen4Care

    The Future of Genomic Newborn Screening: Screen4Care

  • Kirsten Johnson at the 6th International Conference on FXPAC

    FraXI at the 6th International Conference on FXPAC

  • International Workshop on Fragile X Syndrome: in memory of Professor Alessandra Murgia

    International Workshop on Fragile X Syndrome: in memory of Professor Alessandra Murgia

  • Rishabh Jain (pictured above with Aamir Khan) is the world’s first actor living with FXS

    Bringing FXS to the Big Screen: Groundbreaking representations of Fragile X Syndrome in cinema

  • 6 months in Retrospect

    6 months in Retrospect

  • Man with a boy on his shoulders confidently walking in the sunset

    #Resolution4Rare – A landmark resolution

  • A mother and her three children running for a good cause

    Running the X for Fragile X – Interview with Bríd

  • first FraXI congress

    Abstracts of the 1st Fragile X International Congress

  • Member's meeting in Barcelona

    FraXI at the 8th RE(ACT) Congress and 6th International Rare Diseases Research Consortium (IRDiRC)

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Fragile X International

Celebrating and supporting those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions around the world

  • Fragile X International aisbl – FraXI
  • Rue d’Egmont, 11 – 1000 Bruxelles – Belgium
  • info@fraxi.org
  • RPM Bruxelles 0776.532.015
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