Keresés eredménye: story

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Running the X for Fragile X – Interview with Bríd

One hundred and five kilometres. Five cities. One vision.  Bríd Quinn is a mum of two daughters who live with Fragile X Syndrome. She has challenged herself to run five half marathons across five European cities in their honour, and to raise awareness about Fragile X Syndrome. We had the opportunity to chat with Bríd…

Nemzetközi Törékeny X Tudatossági Nap

International Fragile X Awareness Day is celebrated by countries around the world. We welcome everyone joining in to celebrate all things Fragile X on October 10th as we work together to build an inclusive and caring society which values and affirms each of our family members. X/X/2024 We are a force! We are people with…

Ünnepeljük a Törékeny X nemzetközi tudatosságát!

Many countries have celebrated X.X. (October 10th) for over 10 years as International Fragile X Awareness Day – you can read the history of this on our website. All of Fragile X International’s Founding Members celebrate October 10th nationally, and together these countries have raised awareness across borders, unified in their desire to promote inclusion…

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