Bred og inkluderende forskning
Fragile X International envisions a world where there is greater access to broader and more inclusive research on Fragile X Syndrome (FXS) and Fragile X Premutation Associated Conditions (FXPAC). Rather than looking for a cure, our approach to research is focused on furthering full social inclusion of people living with FXS and FXPAC by listening to members of the community. We prioritise supporting them in the way they wish to be supported. In our Research section, you will find studies carried out by FraXI and papers we have published, as well as news on current developments in research relating to FXS and FXPAC.
Våre forskningsretningslinjer og -protokoller
Hvis du ønsker at vi skal promotere forskningen din for våre medlemmer og på våre nettsider, vennligst fyll ut vår forskningsprotokoll. Her finner du vår Retningslinjer for partnerskap, vår Retningslinjer for etisk arbeid.
