A team of expert researchers and FraXI’s board members have published a position paper urging researchers, clinicians, funders, and policymakers to work collaboratively to reshape the research and treatment landscape for FXS. The underlying message of the paper is that we need a coordinated, holistic, and person-centred approach to improving the lives of people with FXS.

The paper calls for a future where research and clinical efforts align with emerging integrated guidance and strengths-based perspectives, ensuring that scientific progress translates into meaningful improvements for people with FXS and their families. 

We have published the full position paper below.

You can read the peer-reviewed scholarly research paper on the Wiley Online Library here