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Fragile X International logo
  • About Fragile X
      The condition
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Fragile X International logo
Fragile X International logo
  • About Fragile X
    • Fragile X Syndrome
    • The Strengths of Fragile X Syndrome
    • Diagnosing Fragile X Syndrome
    • Non-medical Therapies for Fragile X Syndrome
    • Helping Someone with Fragile X Syndrome
    • Girls with Fragile X Syndrome
    • Sexuality
    • Autonomy and Consent
    • Fragile X Genetics
    • Fragile X Premutation Associated Conditions 
    • Movement Break Activities
    • FAQ
    • Fragile X Clinics by Country
    • Resources
  • About Us
    • Family Associations
    • Family Stories
    • Become a Member
    • Board of Directors
    • Board of Advisors
  • News and Events
  • Research
  • Support us
    • Give
    • Sponsor
    • Fundraise
  • Contact
  • info@fraxi.org
  • RPM Bruxelles 0776.532.015
  • Dr Alice Montanaro in a group photo with 21 happy looking people who have helped her with her PhD research

    “Listening to my patients”: Interview with Dr Alice Montanaro on her PhD research

  • A drawing of two boys smelling on a flower, one loving it and the other one less

    FraXI Board of Advisors member Prof Claudia Bagni leads new study on FXS and smell

  • A diagram showing the impacts of FXTAS in male and female humans

    Sequence of neuropsychiatric symptoms for fragile X-associated tremor/ataxia syndrome (FXTAS) is different in females compared to males, new study finds 

  • Kayla and her colleagues at University of Warwick

    “Transparent, collaborative, and hopeful”: Postdoctoral Researcher Kayla Smith on the world of FXS research

  • Dad and Boy

    “Rarely talked about”: a new paper calling for the use of empathetic and kind language in describing rare conditions

  • Boston Scientific Logo and FraXI Logo as they are working together on Fragile XChange

    Introducing Fragile Xchange: A global digital platform for FXS resources supported by Boston Scientific Foundation Europe

  • A Face in a Mirror which has a blue color

    The relationship between visual social attention and heart rate defined sustained attention in FXS 

  • Global View on Fragile X Syndrome

    New study investigates how neurobehavioral outcomes relate to Activation Ratio (AR) in female carriers of FXS full mutation

  • Youth at the beach at sundown

    Our Quality of Life with FXS: new study reshapes Quality of Life outcomes for youth living with rare conditions 

  • A lampion above a canal in Thailand

    30 Years of FXS Research in Thailand

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Fragile X International

Celebrating and supporting those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions around the world

  • Fragile X International aisbl – FraXI
  • Rue d’Egmont, 11 – 1000 Bruxelles – Belgium
  • info@fraxi.org
  • RPM Bruxelles 0776.532.015
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