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Fragile X International logo
  • Mathijs B. van der Lei and R. Frank Kooy

    80 years of progress in FXS research

  • non-pharmacological interventions

    A systematic review of non-pharmacological interventions targeting motor difficulties in neurodivergent children

  • Respiratory Sinus Arrhythmia - a drawing of a lung

    First-of-its-kind study on Reduced Respiratory Sinus Arrhythmia in infants with the FMR1 premutation

  • Premutation Females with preFXTAS

    Premutation Females with preFXTAS: A paper calling for sex-specific diagnostic criteria

  • Dr Alice Montanaro

    “When Life Becomes More Demanding”: A lifelong, multi-integrated approach in delivering Neuropsychological-Cognitive Behavioural Therapy to young adults living with FXS

  • International Workshop on Fragile X Syndrome: in memory of Professor Alessandra Murgia

    International Workshop on Fragile X Syndrome: in memory of Professor Alessandra Murgia

  • A Father and two boys living with Fragile-X-Syndrome

    “Despite having intellectual disability and autism characteristics, children with FXS are skilled at mentalising”, a new study finds. 

  • Shape Research, Change Lives: your voice matters!

    Shape Research, Change Lives: your voice matters!

  • Colourful Brain Network Mapping

    Brain network alterations in Fragile X Syndrome

  • Typical facial characteristics of a boy with Fragile-X-Syndrome

    Facial characteristics description and classification – New developments

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Fragile X International

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  • About Fragile X
    • Family Stories
  • About Us
    • Board of Directors
    • Board of Advisors
    • Full Members
    • Associate Members
  • News and Events
    • News and Updates
    • International FX Awareness Day
    • FraXI Giving Day 2025
    • Fragile X International Congress
    • 28th of February is Rare Disease Day
  • Research
    • Our Research
    • Research News
    • Research Opportunities
  • Support us
    • Give
    • Sponsor
    • Fundraise
    • Volunteer
  • Contact
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