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Fragile X International logo
  • 80 years of progress in FXS research

    80 years of progress in FXS research

  • Fragile X Syndrome across the lifespan

    Fragile X Syndrome across the lifespan with a focus on Genetics, Neurodevelopmental, Behavioral and Psychiatric Associations: A new systematic review

  • Woman with FXS working on fine motor skills

    A systematic review of non-pharmacological interventions targeting motor difficulties in neurodivergent children

  • Dark smokey clouds and fresh looking sky

    First-of-its-kind study on Reduced Respiratory Sinus Arrhythmia in infants with the FMR1 premutation

  • A person walks along a road in autumn

    Premutation Females with preFXTAS: A paper calling for sex-specific diagnostic criteria

  • Dr Alice Montanaro

    “When Life Becomes More Demanding”: A lifelong, multi-integrated approach in delivering Neuropsychological-Cognitive Behavioural Therapy to young adults living with FXS

  • International Workshop on Fragile X Syndrome: in memory of Professor Alessandra Murgia

    International Workshop on Fragile X Syndrome: in memory of Professor Alessandra Murgia

  • Rishabh Jain (pictured above with Aamir Khan) is the world’s first actor living with FXS

    Bringing FXS to the Big Screen: Groundbreaking representations of Fragile X Syndrome in cinema

  • A Father and two boys living with Fragile-X-Syndrome

    “Despite having intellectual disability and autism characteristics, children with FXS are skilled at mentalising”, a new study finds. 

  • 6 months in Retrospect

    6 months in Retrospect

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Celebrating and supporting those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions around the world

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  • About Fragile X
  • About Us
    • Family Associations by Country
    • Family Stories
    • Become a Member
    • Board of Directors
    • Board of Advisors
  • News and Events
    • News and Updates
    • International FX Awareness Day
    • FraXI Giving Day 2025
    • Fragile X International Congress
    • 28th of February is Rare Disease Day
  • Research
    • Our Research
    • Research News
    • Research Opportunities
  • Support us
    • Give
    • Sponsor
    • Fundraise
  • Contact
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