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Fragile X International logo
  • Red flower in a poor state

    Middle-eastern mums of children living with FXS: Study reveals daily struggles and harsh truths

  • Rare Barometer Survey

    Be the Voice of Change: Take the new Rare Barometer Survey

  • Website of Rare Barometer Surveys

    Results of the Rare Barometer Voice Survey on Diagnosis

  • The Future of Genomic Newborn Screening: Screen4Care

    The Future of Genomic Newborn Screening: Screen4Care

  • Kirsten Johnson at the 6th International Conference on FXPAC

    FraXI at the 6th International Conference on FXPAC

  • 80 years of progress in FXS research

    80 years of progress in FXS research

  • Fragile X Syndrome across the lifespan

    Fragile X Syndrome across the lifespan with a focus on Genetics, Neurodevelopmental, Behavioral and Psychiatric Associations: A new systematic review

  • Woman with FXS working on fine motor skills

    A systematic review of non-pharmacological interventions targeting motor difficulties in neurodivergent children

  • Dark smokey clouds and fresh looking sky

    First-of-its-kind study on Reduced Respiratory Sinus Arrhythmia in infants with the FMR1 premutation

  • A person walks along a road in autumn

    Premutation Females with preFXTAS: A paper calling for sex-specific diagnostic criteria

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Fragile X International

Celebrating and supporting those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions around the world

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  • About Fragile X
  • About Us
    • Family Associations by Country
    • Family Stories
    • Become a Member
    • Board of Directors
    • Board of Advisors
  • News and Events
    • News and Updates
    • International FX Awareness Day
    • FraXI Giving Day 2025
    • Fragile X International Congress
    • 28th of February is Rare Disease Day
  • Research
    • Our Research
    • Research News
    • Research Opportunities
  • Support us
    • Give
    • Sponsor
    • Fundraise
  • Contact
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