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Fragile X International logo

Fragile X International

Celebrating and supporting those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions around the world.

Be the Voice of Change: Take the new Rare Barometer Survey

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Get Detailed Information about Fragile X

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2 boys with FXS on a swing

Meet Some Wonderful Families Living with Fragile X

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A boy and his mother enjoying life

The Joys of Fragile X – A Paper has been published

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News and Updates

Rare Barometer Survey

Be the Voice of Change: Take the new Rare Barometer Survey

Read More Be the Voice of Change: Take the new Rare Barometer Survey
Website of Rare Barometer Surveys

Results of the Rare Barometer Voice Survey on Diagnosis

Read More Results of the Rare Barometer Voice Survey on Diagnosis

The Future of Genomic Newborn Screening: Screen4Care

Read More The Future of Genomic Newborn Screening: Screen4Care
Kirsten Johnson at the 6th International Conference on FXPAC

FraXI at the 6th International Conference on FXPAC

Read More FraXI at the 6th International Conference on FXPAC
Mathijs B. van der Lei and R. Frank Kooy

80 years of progress in FXS research

Read More 80 years of progress in FXS research
Fragile X Syndrome across the lifespan

Fragile X Syndrome across the lifespan with a focus on Genetics, Neurodevelopmental, Behavioral and Psychiatric Associations: A new systematic review

Read More Fragile X Syndrome across the lifespan with a focus on Genetics, Neurodevelopmental, Behavioral and Psychiatric Associations: A new systematic review
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Fragile X International

Celebrating and supporting those living with Fragile X Syndrome and Fragile X Premutation Associated Conditions around the world

  • Fragile X International aisbl – FraXI
  • Rue d’Egmont, 11 – 1000 Bruxelles – Belgium
  • info@fraxi.org
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  • About Fragile X
    • Family Stories
  • About Us
    • Board of Directors
    • Board of Advisors
    • Full Members
    • Associate Members
  • News and Events
    • News and Updates
    • International FX Awareness Day
    • FraXI Giving Day 2025
    • Fragile X International Congress
    • 28th of February is Rare Disease Day
  • Research
    • Our Research
    • Research News
    • Research Opportunities
  • Support us
    • Give
    • Sponsor
    • Fundraise
    • Volunteer
  • Contact
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