研究機會

Shape Research, Change Lives: your voice matters!

A research team led by leading scholars including Professors Emily Farran, Gaia Scerif and more are inviting people living with Fragile X Syndrome aged 10 and over and their parents and/or carers to take part in a survey (also available in German, Spanish, Italian,

Dutch, Polish, Portuguese and Hindi). 

Results obtained from this survey will be analysed by the  team to understand how the FXS community wishes to be supported through future research and policymaking. This is a huge step forward in ensuring that researching FXS and other rare conditions is inclusive, holistic and meaningful to the community itself. FraXI strongly encourages all our members to share their valuable input. Together, we can change the way the world of research approaches topics which are important to all of us who live with FXS. 
Click 這裡 to access the survey.

經 FraXI 核准的研究

Please see below information from Adam Whalley, a student doing a Doctorate in Clinical Psychology at the University of Lincoln, UK. He has asked FraXI to advertise his research and invite people to complete his questionnaire. He has completed our FraXI research Protocol and his proposal has been approved by our Research Committee.

有關父母應付能力的論文 - 線上問卷調查

我的名字是 Adam Whalley，我正在為我的博士論文專案招募參與者，該專案是關於有智障兒童的父母的家長應對方式。這是我的臨床心理學博士學位 (DclinPsy)。您的參與時間約為 30 分鐘 完全出於自願。您將參加抽獎，贏得以下四個獎項之一 25英鎊 亞馬遜 優惠券。