Together Making A Difference

October 10th (X.X.) is International Fragile X Awareness Day!

You can read the history of our celebrations here: https://www.fraxi.org/default.asp?
s=awarenessday. We celebrate on X.X. in honour of the X chromosome, after which
Fragile X Syndrome is named.

Our slogan this year is Together Making A Difference. Together, all of our countries and
family associations come together to make a difference. We raise awareness across
borders about Fragile X Syndrome (FXS) and Fragile X Premutation Associated
Conditions (FXPAC). We are unified in our desire to promote inclusion and equality for
all those living with FXS and FXPAC, fighting discrimination, stigmatisation and
ostracisation. Celebrations, activities, conferences and webinars are organised in many
of our countries for X.X. Below is a list of many of these events. Together, we are making
a difference!

Italy Associazione Italiana Sindrome X Fragile: more than 30 lit up
monuments, October 10th; interviews on local television stations, October
3rd; talking about Fragile X Syndrome, September 23rd; a webinar to
reward the best inclusive school practices, October 10th
https://www.xfragile.net/

Switzerland Fraxas: Research on Fragile X Syndrome. Open day at
Professor Bagni Laboratory. Lausanne October 7th
https://fraxas.ch/accueil/

India Fragile X Society: stall at IIT Roorke’s Annual Festival. 13th-15th
October
https://www.fragilex.in/

Catalonia Associació Catalana Sindrome X Fràgil: Fundraising show,
Barcelona October 22nd
https://www.xfragil.cat/

Germany Frax Interessengemeinschaft Fragiles -X e.V.: Congress for
families, Oberlahr from September 29th to October 1st
https://www.frax.de/

Spain Federación española del Síndrome X-Frágil: Press Release and letter
to the Spanish MEPs in the European Parliament, October 10th;
Informative table in Valencia, City Coucil, October 5th; Painting and music
workshop, Calahorra, La Rioja, October 7th
https://xfragil.org/

Poland Fundacja Rodzina Fra X: The story of FraXI the Dwarf on social
medias
https://www.rodzinafrax.pl/

France Fragile X: Launch of the new graphic identity. New logo, new
website and a Fragile X France mascote joining
https://www.xfra.org/

Denmark Landsforeningen for Fragilt X Syndrom i Danmark: National FX
family Weekend, Middelfart, September 29th-October 1st
https://fragiltx.dk/

Netherlands Fragiele X Vereniging: Picnic with FX families, September
17th; “Contact” day for parents and relatives in Baarn, November 4th
https://www.fragielex.nl/

Portugal Associação Portuguesa da Síndrome do X-Frágil: Workshop
about intellectual disability and family meeting, Ramo Grande Auditorium
Foyer, Terceira Island, Azores, October 14th
https://www.apsxf.org/

Download PDF press release