Emilie Weight has a son with Fragile X Syndrome. She gave a TED Institute talk which you can view via this link.
The video caption says: Emilie believes that a diagnosis of disability can create opportunity, not despair. Her son's differences compelled her to question her inner self and her role in the world. With this new mindset she discovered his true superhero qualities when she stopped treating him like a patient and started treating him like a partner, leading her to three essential tools for how to approach life.